This show highlights people and events that are happening in our community, both locally and globally. We believe that people who are doing an outstanding job or are helping their community in some way that goes above and beyond need to be recognized. Also if there is a special event happening that people need to know about the show will cover this as well.
Tonight on www.TNTEVENTSRADIO.INFO hear from a father and his son who has months to live and how the system treats them.
I think its Time to wake up!!
Tonight at 7:pm PST on www.tnteventsradio.info
or 604*200*3297 in the USA call (347) 945-6920,(877) 564-0326
Funny Enough the first 15 mins of this show did not record. Why ?????
Tylar Zeilenski , and his Father talk about health care in the USA. The system made to protect us and help us around the world is failing us.
It’s Time to wake up!!
We talk to Zeitgeist Langley on their Solutions concept
Tylar Zielinski hopes the disc jockey plays the song “Live Like You Were Dying” at his prom tonight. For Fonda-Fultonville High School teenagers that song will have a special meaning with Tylar in the ballroom.
“I really don’t know how long I have. It’s day by day,” Tylar said. “The doctors don’t know how I’m surviving. They told me I wasn’t going to live past 12.”
Tylar, 18, was born with Duchenne muscular dystrophy, a genetic disorder that is destroying his muscles. He lives in Sprakers, Montgomery County, with his dad and sole caretaker, Shawn Zielinski.
As a child, Tylar walked with difficulty and started using a wheelchair when he was 8. At 15, sitting in a wheelchair was too painful so he lives in bed. Tylar’s body is twisted and his hips don’t fit in his sockets properly. He hasn’t left his home in three years.
His bed looks over a window, the only glimpse of the outdoors he gets.
“This means everything to me to go to my prom because I don’t know if I’m going to be here next year,” Tylar said, his voice breaking.
The disease has eaten away the muscles of his legs, chest and arms. He weighs about 80 pounds and can only move his head. He talks like a normal teenage, laughs, smiles and has expressive brown eyes.
“I can move my head pretty good with the music,” he said. “That’s my dancing. It works.”
Tylar’s dad wanted him to have a quintessential teenage experience.
“His feet haven’t touched the floor in over eight years and he’s never danced,” Zielinski said. “I know that there is a likelihood of him not being here and actually graduating, so I called the school and asked special permission so he could enjoy what time he has left and feel like the rest of the world.”
Tylar’s best friend, Sami Fraser, invited him to join her and her date, Mike Guiffre, as a threesome at the prom.
Sami met Tylar when she visited the family with her dad, the school psychologist.
“I was nervous. I didn’t know what to expect,” she said. “But he lightened the mood.”
They bonded over movies. She kept visiting and they e-mail back and forth. Though Tylar has never been able to attend the high school, students there heard about him and began stopping by.
“Now he’s one of my best friends,” Sami said. “He’s a very happy person. He doesn’t let his sickness affect his personality at all.”
Tylar is at peace with himself, Michael Fraser said.
“He’s embraced his disease,” he said. “He knows it is of a terminal nature but as he said to me, ‘Fraz, it is what it is, but I’m going to make each day count.’ ”
Tylar said complaining doesn’t change the situation “and if you keep a positive attitude it makes everything better.”
Moving Tylar’s fragile body will be tough and potentially dangerous, but Greater Amsterdam Volunteer Ambulance Corps has donated an ambulance and paramedics to take Tylar to the prom at the Desmond Hotel in Colonie. Dunday’s in Gloversville loaned him a tuxedo for free and the school waived the prom fees for the cash-strapped family.
Zielinski helped his son try on a tuxedo Friday and they pondered how to put on the special black buttons on the shirt front. “We’ll save that for tomorrow,” his dad said. He held a mirror in front of Tylar and kissed his son on his buzz-cut head.
In the song Tylar hopes to hear at the prom, country singer Tim McGraw croons about a man who “loved deeper” and “spoke sweeter” after learning he might die.
“It’s telling about how you should live life like you were dying and it’s a good way to live,” Tylar said. “It doesn’t matter whether you are healthy or not. You should live that way because you don’t know how long you have.”